Kristin "Kourageous" Katich

Things have been wonderfully quiet the last two weeks. Kristin had labs done and her meds are being bumped up to 100%. I called the student health center for results and talked to someone who normally does not report them. Based on those results, her ANC is only 1364. These results were wrong....which I suspected when he said her platelets are high at 17. Salt Lake called Kristin and said her ANC is in the 3000 range and that her meds need to be bumped. At those counts, yes they do. So, at 1:21 a.m., with the preface of " I know you are sleeping but ," Kristin sent me a text letting me know the status change. Given the time change, it was 2:21 a.m. her time.....I know, what ever could she be doing at that hour! Having FUN. Good for her :-) She is very concerned about another neutropenic episode and the ensuing consequences. I do not blame her one bit as they have landed her in the hospital one too many times with some serious complications. shingles, pseudomonas, etc.... I...

Eric, Kristin, Cody and Wyatt Look at that hair!!!!!!! Well, Kristin's lp with intrathecal methotrexate and push of vincristine went well. Her labs were up, consequently her daily oral meds were increased to 75%. This is what we expected. I am keeping my fingers crossed this will not make her counts go in the you-know-what again. One truism throughout maintenance is that she cannot tolerate the oral meds at 100%. Lets not go there again please. After our doctors consulted with the head of the study that Kristin is on, it was determined that she would be given vincristine at only 50% and then increased to 75% to give her feet some time to recover. Vincristine has been brutal on them. (If you could see them, you would be amazed that she can even walk) They need a rest and at only 50% the effects are still bad but not as crippling as when she is given a full dose. I hope that these side effects are not permanent. We have been told that most likely they are not. As much as we hate ...

Just a quick update folks. Kristin had labs done yesterday. drum roll please.......... WBC 5.6, HGB 13.6, PLATES 322, ANC 2166. I suspect they will increase her daily oral meds a stitch. School is going well and we told her we are expecting straight A's as she has a light academic load this semester. Either way, she works hard and that is what matters. She has a bit of a cold, sore throat and is very tired, but no fever!!! With these labs I am not too worried. As always, your love, support and concern are appreciated more than you will ever, ever know!

First things first .....a HUGE thank YOU to our good friend Tammy Brunst for escorting Kristin to her clinic visit. I worried all morning and hated the fact that I was not there. As hard as that is, I know she is exactly where she should be and so, so happy. You are the best Tammy and we love you!! Kristin's recent labs are WBC 5.2 great, HGB 13.3 great, PLATES 354 you guessed it...great, ANC 2.7 great. What does this all mean? The daily oral regime can begin again at 25% and then it will be adjusted as per her labs to see what she can tolerate. We all know she does not tolerate the meds at 100% so I am hoping that we don't go there again. We have gone down that road one too many times (I think it has been at least 3 or 4 times) with unpleasant consquences resulting in having to hold all chemo. I know it is through trial and error to find the right balance, but I am hoping there will be smoother waters for the duration of maintenance. Looking back through maintenance thus far...

I am now home and Kristin remains in Provo. She is settling into her routine of the daily iv antibiotics Gentamicin and Levaquin. (i hope i spelled those right) The Picc line is not as uncomfortable now and she is figuring out how to work with it a little better each day. As of today her ANC hoovers at 596. This is so much better than the last week. For you or I, our ANC (absolute neutrophil count...those awfully important, bacteria fighting, white blood cells that help fight infection) is around 5000, give or take. During maintenance the goal is for this count to dance between 1000-2000. I have no doubt that by the time her next appointment comes around next week she will be within the desired range. The pseudomonas aeruginosa is responding well to the meds. Although we are both a bit frustrated with the fact that she was discharged without any wound care instruction. I am not surprised by this. It is quite nasty and painful and I am not sure quite how to approach the dressing changes...

At the start of the day, Kristin and I resolved ourselves to the fact that she would be held hostage for at least two more days as per the resident who spoke with us. There were no improvements on her labs today and the resident said she wanted to see a little more improvement before she went home. Together we conjured up a whirlwind of top notch activities. "we could catch up on the OC, take naps, lots of naps, change the sheets, google gross pictures of pseudomonas', order take out from food service,(actually they do a pretty darn good job if you were to compare this hospital to the others we've frequented), wait with anticipation for Oprah, maybe another nap, zzzzzzzzzz. Then, there was a whisper of good news ... maybe. Evidently the resident was not quite right. Nay, the attending had other ideas. Since the cultures were negative, she had been afebrile (without fever) for 24 hours, and the abcess was not worsening, they felt it was safe to send her home. Even with an ...

fever, neutropenic, cultures, specimens, pseudomonas,PICC line, tears, conscience sedation, antibiotics, fortaz, gentamicin, dagdabit!