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GO GO SPECIAL K!

Our last bone marrow biopsy went great! It showed no leukemia cells. This shows that she is having a positive early response to the chemo which is a very, very good thing! All of her labs are coming back "smashing!" We are dealing with secondary complications such as situational diabetes. This is only tempoary and should resolve once we are off the strong steroids. Consequently she has to have blood sugars checked often, insulin injections, and follow a carb controlled diet. not fun! In trying to be supportive, I am counting carbs along with her. It is hard when someone has a birthday up here every other day and wants to share their cake. Keep the dang cake to yourselves! Kristin is getting very tired more often and is noticing that she can pull out clumps of hair....I am sad. Although I knew this was coming, I was taken back by the situation and caught off guard. Baldness goes hand in hand with leukemia and every parent up here would rather have a beautifully healthy, shini...
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TRIUMPHANT!

828 days...is a very long time. Our hearts are full of gratitude for this day, and humbled beyond description by the monumental tasks which have lead us here. This has been no small undertaking and should rightfully be shouted from every roof top. Well,that is a little dramatic, but honestly, I am overwhelmed with joy! If you have read our blog from the beginning, you know the story, the heartache, struggles and triumphants. All 828 days of them. Most importantly you know the kourage children living with cancer posses. It is humbling to say the least. Hopefully, one day, children will not have to live with cancer. They will be free of cancer. For those families who have lost their child to cancer, life without them is apparent as the "sun failing to rise." A heartache no one should ever know. If you find yourself privileged to know of a child suffering.... l ove them dearly, hold them tightly. Look into their eyes.You have touched a piece of heaven and I promise you will nev...
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The Beginning

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Hello to all from Children's Hospital Oakland, California To it still difficult to grasp that we are actually here...hearing this news...living in this new world. Kristin's official diagnosis is ACUTE LYMPHOBLASTIC LEUKEMIA precursor b. This is very treatable form of cancer. She is enrolled in a cutting edge program for treating A.L.L.. All of us here are very optimistic. She is under the care of amazing Doctors and the recipient of the miracles of modern medicine. It will be a very rough 2 years or so, but she will survive. Thus far, we have been on the fast track. This is an amazing institution and we are very, very fortunate to be here. Nothing short of kindness and compassion have been shown to us from the very beginning. Upon our arrival on Monday, she has undergone a bone marrow biopsy, 2 lunbar punctures, echo cardiogram, chest x-ray, broviac cath . placement, and numerous pokes and prods. She received her first chemo treatment; injected into the spinal fluid, Wednes...
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