CHEMO & COLLEGE

Yesterday Kristin went to Primary Children's Hospital in Salt Lake City for her vincristine iv push. Good friends Pam and Lindsay Peperone were gracious to accompany her. Lindsay is actually Kristin's roommate for the fall and winter. (This in itself is a heartwarming story that I will post soon.) Since Kristin's veins have been destroyed by the iv acyclovir, trying to find a good proved difficult. After a few futile attempts, a specialist was called in and they found success. Ironically it was the vein that she told them they should use in the first place. go figure.... She still continues with daily regime of meds as before just on a lighter dose because of her counts falling. I am sure this will be adjusted as they always are so happy to give her the maximum possible, humanly consumable, most toxic dose tolerated. All in all she said everyone was very kind and welcoming. I of course, tried to get the play by play through texting and phone. Later in the evening she sounded "chemo-ed!" Friday will be spent curled up in bed resting. I told her I kept on imagining her tucked into my bed, rubbing her head, and telling the boys to be quiet. I miss her so.....

Comments

Amy Girl said…
I'm sure you do. I've been thinking of you both. What a transition.
Leslie! I want you to call and let me help Kristen! I WANT TO BE THERE FOR YOU (as a really lame replacement) for whatever. YOU KNOW I WOULD DO ANYTHING. PLEASE CALL ME!
I know a Dr.and a nurse who work at Primary, and the woman behind the telethon for Children's Miracle Network is my neighbor. She practically lives there. They would do what they could to get her what she needs as well if I ask them. KEEP ME POSTED! You hang in there and start doing something to heal you own self girl. I love you,
Georgia
Kathy Hawley said…
Leslie, I can only imagine the hole in your life with Kristin in Provo. Not only has your daughter moved on, but your fulltime job of overseeing her every medical need is in her hands as well. Don't wear out the cell phone :)
I can relate to the maximum amout possible game they play! We'd settle on a dose and then they'd raise it, counts went down, hold all meds etc. It got to where they would ask me which med I thought was making her counts go down! I knew a lot, but not that! We finally decided slow and steady (not max) would win the race. Have a great summer; I hope you can relax a little and enjoy the day. I know it will be hard!

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