YEA, SHE'S HOME!

Kristin came home around noon today. What a difference from last Friday! From too weak to speak to walking out to the car on her own! She still needs to have TPN for 12 hours a day. This is in addition to anything she can take by mouth. As far as labs go Triglycerides are still very elevated???? Peg asparaginase seems to be the culprit here. Albumin is still low, but seems to be holding. HGB is dancing close to the edge so hopefully we can make it through the weekend without any transfusion issues. The fungi seems to be retreating. An upper GI scan showed the possibility of an ulcer, but we won't know for sure as you have to be scoped to confirm one and that is not an option for Kristin. But, all the symptoms are there and many of these kids have had ulcers so it is not a surprise. She is due at CHO on Monday morning and it looks like we will be there for about 10-12 days for chemo and radiation.Kristin is not quite up to speed, but she has definitely improved thanks to all the great care she received at Renown. She received excellent care from some outstanding nurses who genuinely loved her through this ordeal. Thanks to Dr. David Petersen,Kristen, Denise, Kenna, Jess, Jen, Becky, Kanna, Delores, Cheryl! Nurses are awesome!



I have to thank all the good friends who gave their support and love to all of our family. Please know that this past week would of been unbearable without all the help and prayers we received.

Comments

Anonymous said…
Yay, Kristin! So glad you are home - what an enormous relief that must be! And so glad you are feeling somewhat better.

Please hang in there and keep fighting the fight. We look forward to seeing you in Oakland next week.
October 31, 2008 at 9:12 PM
Troy-Michelle Reinhardt said…
Kristin and Family-
I just read your article in the Journey Magazine that came with our Reno Mag with the newspaper this morning. I've been checking in on you from the sidelines by asking people who know or know someone who knows you - please know that my prayers have been with you since December 07 and continue with you today.
Troy Reinhardt
November 5, 2008 at 6:07 AM
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