19 DAYS...2 MORE TO GO!

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GO GO SPECIAL K!

Our last bone marrow biopsy went great! It showed no leukemia cells. This shows that she is having a positive early response to the chemo which is a very, very good thing! All of her labs are coming back "smashing!" We are dealing with secondary complications such as situational diabetes. This is only tempoary and should resolve once we are off the strong steroids. Consequently she has to have blood sugars checked often, insulin injections, and follow a carb controlled diet. not fun! In trying to be supportive, I am counting carbs along with her. It is hard when someone has a birthday up here every other day and wants to share their cake. Keep the dang cake to yourselves! Kristin is getting very tired more often and is noticing that she can pull out clumps of hair....I am sad. Although I knew this was coming, I was taken back by the situation and caught off guard. Baldness goes hand in hand with leukemia and every parent up here would rather have a beautifully healthy, shini...
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The Beginning

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Hello to all from Children's Hospital Oakland, California To it still difficult to grasp that we are actually here...hearing this news...living in this new world. Kristin's official diagnosis is ACUTE LYMPHOBLASTIC LEUKEMIA precursor b. This is very treatable form of cancer. She is enrolled in a cutting edge program for treating A.L.L.. All of us here are very optimistic. She is under the care of amazing Doctors and the recipient of the miracles of modern medicine. It will be a very rough 2 years or so, but she will survive. Thus far, we have been on the fast track. This is an amazing institution and we are very, very fortunate to be here. Nothing short of kindness and compassion have been shown to us from the very beginning. Upon our arrival on Monday, she has undergone a bone marrow biopsy, 2 lunbar punctures, echo cardiogram, chest x-ray, broviac cath . placement, and numerous pokes and prods. She received her first chemo treatment; injected into the spinal fluid, Wednes...
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T-Shirts for Team Kristin

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T-shirts are available through Amy Erger at 852-0428 or 354-8825. The proceeds from the sale will go into an account to directly benefit Kristin. These shirts say Live Happy on the front and Team Kristin on the back. They are red with white lettering, 50/50 blend and come in sizes s,m.lg.xlg., xxl. We are still here in Vacaville waiting for Kristin's ANC count to go up. We were scheduled for surgery on the 24th., but her numbers were too low. Consequently, we are waiting until Monday to start "consolidation." The upside to waiting for these couple of days may make it possible for her to go to the JA dance. She is looking forward to this dance so much. I know that she just wants to be with friends again and forget about Leukemia for just a little while. I cannot blame her one bit and hope that it works out for her. In the mean time, we are trying to pass the time somewhat constructively. I have taken her to early matinees, making lists of things to do, write letters, etc. ...
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