19 DAYS...2 MORE TO GO!

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GO GO SPECIAL K!

Our last bone marrow biopsy went great! It showed no leukemia cells. This shows that she is having a positive early response to the chemo which is a very, very good thing! All of her labs are coming back "smashing!" We are dealing with secondary complications such as situational diabetes. This is only tempoary and should resolve once we are off the strong steroids. Consequently she has to have blood sugars checked often, insulin injections, and follow a carb controlled diet. not fun! In trying to be supportive, I am counting carbs along with her. It is hard when someone has a birthday up here every other day and wants to share their cake. Keep the dang cake to yourselves! Kristin is getting very tired more often and is noticing that she can pull out clumps of hair....I am sad. Although I knew this was coming, I was taken back by the situation and caught off guard. Baldness goes hand in hand with leukemia and every parent up here would rather have a beautifully healthy, shini...
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Clinic Follow Up Appointment

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Kristin went to the Huntsman Cancer Institute for her followup appointment recently.  Her labs are great. WBC 8.3 good, HGB 14.7 good, Platelets 224 good.  Pretty much normal would sum it up.  She still deals with the late effects that are inevitable. Life is good, very good.  Kristin and Nate will spend the summer with us while he works with a local judge and laywer. She hopes to spend time with me at the Northern Nevada Children's Cancer Foundation. School is going great and she loves focusing on her art.  She was 1 out of 10 students accepted into the visual arts program and she loves it. Her talent continues to amaze us.  The pictures above are from when we were fortunate enough to hear Mitt Romney speak when he came to town.  The drawing is of our dog Lucy. The bird is a piece that she worked on all last summer.  I wish you could see the detail as it is made up of tiny pieces of beautiful paper and then highlighte...
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The Beginning

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Hello to all from Children's Hospital Oakland, California To it still difficult to grasp that we are actually here...hearing this news...living in this new world. Kristin's official diagnosis is ACUTE LYMPHOBLASTIC LEUKEMIA precursor b. This is very treatable form of cancer. She is enrolled in a cutting edge program for treating A.L.L.. All of us here are very optimistic. She is under the care of amazing Doctors and the recipient of the miracles of modern medicine. It will be a very rough 2 years or so, but she will survive. Thus far, we have been on the fast track. This is an amazing institution and we are very, very fortunate to be here. Nothing short of kindness and compassion have been shown to us from the very beginning. Upon our arrival on Monday, she has undergone a bone marrow biopsy, 2 lunbar punctures, echo cardiogram, chest x-ray, broviac cath . placement, and numerous pokes and prods. She received her first chemo treatment; injected into the spinal fluid, Wednes...
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