DELAYED INTENSIFICATION 1

Yesterday we began delayed intensification 1. (lasting 57 days) We arrived at Renown @9:00 for a physical. Dr. Raphael was with us today and that is good for Kristin.
She really likes him and says that he talks to "her" about what is going on, how she is feeling and so forth. Our two favorite Renown nurses were there also. Sandy and Tia. They are wonderful women who care for so many children in our area. They treat Kristin like gold and we love them! Around 10:30 Neda Iranpour and her camera man met us there for another interview. She is great and has made Kristin feel very loved and supported. Dr. Raphael was also interviewed. This aired on June 9th, but you can also view it on their website @www.ktvn.com and follow the links. The rest of the day was filled with a lumbar puncture with intrathecal methotrexate. Kevin Lasko sent Kristin off to sleepy land. She woke up and said that was the best nap she ever had. (her insomnia makes it very difficult to sleep)She also had vincristine through her broviac line. We also began a regime of dexamethasone (dex) in pill form twice daily. Dex will follow a schedule of seven days on, seven days off, then another seven days on. Lastly, doxorubicin was given as an iv drip which took six hours. On day 29 there will be another set of nasty drugs to kill the nasty cancer. Whew! Needless to say we arrived home around 7:00. Kristin went to lay down for the evening as she said she felt awful. I asked her how she was feeling and she said, "Poisoned." You could see in her eyes that she was not feeling well. I was worried about her vomiting during the night but thankfully she did not have a problem with that. The insomnia was the culprit, so it was a rather restless night. So, today she is drinking lots of fluids and taking it easy as she is not quite feeling herself yet. Soon though I am sure....

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