SHE IS 19!

Today is Kristin's 19th birthday...The years leave me speechless, grateful, and amazed all at once.  While it is oddly strange to not have her here at home, we are thrilled that she is celebrating another year of Living Happy. 
still wishing Kristin Happy Birthday!
Kristin's clinic visit in Salt Lake went well.  A huge thank you to the lovely Pam and Lindsey Peperone for escorting her.  Her recent labs were outstanding.  In fact they were a bit too outstanding so they have increased her chemo to 75%. Her ANC was over 4100!  WBC 7.1, HGB 13.3, PLATES 22 Dare I say normal?  Lets hope this little 25% increase does not send her counts crashing like last time.  Once again,she has developed the strange bumps on her feet.  I did some research and have found something that fits her symptoms perfectly.  It is called perniosis.  This is caused by the constriction and damage of the small blood vessels(vasculitis) in her feet and how they react to temperature change.  To me it is quite obvious that the blood flow to her feet is restricted.  They are often times red, purple, swollen, loss of feeling, and hot. I have seen her toes spontaneously bleed at times.  I have read about cryoglobulinemia, which is a the presence of abnormal protein in the blood. This could possibly be related to liver function,  Mmmmmm. Cryogobulins are antibodies... They turn solid when there is a drop in temperature. I looked through her last labs to see what her liver functions were, but there was nothing recorded. Does anyone else have any ideas?

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